From: Feasibility of clinical newborn metabolic screening in a high-volume maternity center in Nepal
Health provider metrics (n = 114) | |
Have you sent a NBS test in the past? (yes) | 72% |
Understanding of NBS? (moderate) | 67% |
Would NBS be beneficial? (yes) | 100% |
Is the cost worth the benefit? (yes/no) | 77%/5% |
Should NBS be performed routinely in Nepal? (yes/no) | 90%/3% |
Likely to use NBS in the practice if available? (yes) | 86% |
Benefits of NBS per healthcare providers (> one answer) | |
No benefit | 0% |
Early diagnosis | 95% |
Early treatment | 89% |
Education of parents | 83% |
Provide reason for unexplained death and/or neuro-disability | 88% |
Provide understanding of risk for future pregnancy | 91% |
Determine population prevalence of IEM | 86% |
Hesitation regarding NBS implementation (> one answer) | |
Comprehensive management unavailable | 72% |
Conditions tested are not significant contributors to mortality/morbidity | 22% |
Diversion of funds from other areas of the healthcare system | 36% |
Social stigma | 11% |
No hesitation | 17% |
Perceived challenges to NBS (> one answer) | |
Cost | 100% |
Availability of facilities for analysis | 99% |
Inadequate collection and processing | 94% |
Delay in receiving test result | 93% |
Time commitment for counseling and testing | 94% |
Ability to contact families to provide results | 100% |